Public Partnership Oversight Committee
Our Public Partnership Oversight Committee consists of patients, carers and interested members of the public from across NHRP’s partner organisations. They help to shape NHRP’s Public Partnership strategic and action plan priorities and ensure that Patient and Public Involvement is integral to NHRP within its governance activities and culture.
Fozia Haider, Interim Chair
Fozia is 52 and from Gateshead. With a background in public and charity/voluntary sectors as an engagement strategist, she is committed to breaking down traditional structural barriers. She is also dedicated to levelling up the playing field, amplifying the voices of those affected by inequalities, and helping them reach their potential through collective community empowerment. She says: “It’s a profound privilege to make a difference to those at the sharpest end of social injustice.”
Victoria Bartle
Victoria is 46 and from Newcastle Upon Tyne. Due to her multiple long term conditions causing chronic pain and fatigue, Victoria left work in 2016 and began getting more involved in PPIE. She now supports a number of individual research studies, as well as being a member of committees and strategic PPI groups, nationally and locally. She is also involved in Fuse, the translational research collaboration of the North East universities.
Steven Mutungwazi
Steven is 34 and from the North East. He works for the North East Autism Society and was introduced to Newcastle Health Research Partnership as a member of the National Institute for Health and Care Research (NIHR) Newcastle Clinical Research Facilities Patient, Public Involvement group. He is dedicated to research and giving back to his community.
Susan Mountain
Susan is 59 and from South Shields. She is actively involved in PPIE, including being a public member of the Arc, REEM, Secure Data Network groups. She is also currently involved in tobacco and homelessness research, as well as artificial Intelligence research on comorbidity and polypharmacy. She has shared her own experience about tobacco addiction and cancer, including speaking at Parliament about the financial and health inequalities caused by smoking.
Katie Rumney
Katie is 26 from Northumberland. After being diagnosed with multiple long term physical and mental health conditions which kept her from maintaining employment, Katie turned to PPIE as both a source of income and a way to use her experiences for the benefit of others. She now supports PPI nationally, and is writing papers for various research projects she has been involved in. She predominantly works within the CNTW NHS Trust, as it is her local trust, but also works for NHS Trusts in other parts of the country.
Katie’s motivation for PPIE is to help other young people understand their own mental health and put the needs of the service-user into the centre of service implementation.
Michal Chantkowski
Michal is 39 and based in Sunderland. He has worked in Public and Patient Involvement through the Research Support Service and Newcastle University, the NIHR Academy, and co-producing the NICE 2016 Community Engagement in Health guidance.
As a migrant living in the UK, he is keen to use his personal experience as well as his experience working with minority ethnic and migrant communities, including the Eastern European community in the voluntary and community sector, dating back to 2009.
Carly Lovedawn
Carly is 38, grew up in rural England, and lives in Gateshead. As an inclusion specialist and mental health professional, they saw first-hand how COVID-19 deepened existing health inequalities. Carly worked alongside local communities to remove access barriers to mental health support, strategically amplifying people’s voices to drive equitable, participatory research and peer-led services. Their involvement in ‘PPIE’ grew from appreciating the critical need for power sharing, to ensure lived expertise steers the decisions of practitioners and researchers alike.
Carly identifies as queer and neurodivergent, and lives with daily seizures and extreme fatigue following a 20-year wait for diagnoses. Carly’s advocacy and commitment to inclusion is fuelled by a deep understanding of marginalisation and a life-long passion for social justice.
You might be interested in
The Wild and Powerful Things
In this blog our PPIE contributor Carly Lovedawn shares the reasoning behind their involvement in the NHRP Public Partnership Oversight Committee to ensure that healthcare is equal.
What does Research Inclusion mean to me as a public contributor?
In this story we interviewed four of our PPIE contributors to discover what inclusion in research looks like to them.
PPIE- making a career while healing my former self
Learn more about Katie Rumney’s journey to our public partnership insight committee and the positive experiences she has had as a PPIE contributor.
